Improving the diagnosis, management & lived experience of Lewy Body Dementia in Ireland

What is Emerald-Lewy?

EMERALD-Lewy is a national research initiative focused on Lewy body dementia (LBD), the second most common—but most underdiagnosed—form of dementia.

Through research, collaboration, and public involvement, we aim to improve diagnosis, empower people living with LBD, and influence future healthcare policy in Ireland.

People with Lewy body dementia in Ireland are chronically underdiagnosed. We’re working to change that.

Our focus areas

We focus on four core areas, all rooted in the Living Well Framework for Dementia.

Diagnosing well

Improving diagnosis accuracy and care pathways

01
Living well

Exploring daily life, quality of life, and peer support

02
Knowledge sharing

Raising awareness and co-creating resources with the community

03
Impacting policy

Influencing services and national healthcare policy

04
Natural

Who is EMERALD-Lewy for?

EMERALD-Lewy brings together people from all walks of life to improve understanding, care, and support for those affected by Lewy body dementia

Researchers & clinicians

We provide a platform to connect, collaborate, and stay informed on the latest interdisciplinary research in Lewy body dementia.

People with lived experience of LBD

Your voice guides our work, helping shape research and resources that truly reflect real-life challenges and needs.

Families & care partners

We offer insights, support, and opportunities to connect with others navigating similar journeys.

Policy makers & service providers

Our findings aim to inform better care systems and policy decisions grounded in real-world evidence and lived experience.

Latest news

Our partners are key to making this happen

We’re proud to work with a wide range of institutions, clinicians, artists, and advocacy groups.

Frequently Asked Questions

Whether you’re a researcher, care partner, or living with LBD yourself — we're here to help.

What is Lewy body dementia (LBD)?

LBD is a complex and often misdiagnosed form of dementia that affects thinking, movement, sleep, and behavior — and includes both Parkinson’s dementia and dementia with Lewy bodies.

Why is LBD often misdiagnosed?

Because its symptoms overlap with Alzheimer’s and Parkinson’s disease, LBD is frequently mistaken for other conditions — leading to delayed or incorrect treatment.

How can I get involved in EMERALD-Lewy?

You can join our professional or lived experience networks, take part in studies, or contact us at emerald@tcd.ie or on our contact page.

How is EMERALD-Lewy different from other research programmes?

You can join our professional or lived experience networks, take part in studies, or contact us at emerald@tcd.ie or on our contact page.

Want to help improve the future of Lewy body dementia care?

You can be part of our research and community by joining one of our networks. Professionals can stay engaged with the latest research, while people with lived experience play a key role in guiding and co-creating that research.